astonamous,
It is different for everybody...very complex-not easy to talk about in a half hour show...glad I didn't!

astonamous,
Fuck Bush!

astonamous,

Well, at least it is not fatal. And the "panel" seemed to be split between those who thought they'd find a cure in their lifetimes and those who didn't. But every one of them was excited about stem-cell research.

It's almost funny - I can't watch a Goddamn thing on TV anymore that doesn't at some point remind me just how much Bush sucks!

Jennifer,

Just saw 30 seconds of Richard on Larry King from 1996 or close to that. The hour is on MS and surprisingly informative for Larry. The main thing that keeps coming up: the disease works differently on every single person that has it. How the hell do you diagnose a disease like that??

cbrodie13,
I know that the progressive is the worse.. and I'm thankful that I have the rrms if I have to have this at all. But I do agree that the pharmacutical companies are making a lot of money with the "treatment" and not the "cure". Oh... and those seminars?????? the ones that the drug companies sponsor??????? I went to one... left early.

Jennifer,
Thanks Jennifer. I forgot to sign in yesterday...I'm a dunce half the time!

Just pisses me off that nothing is geared toward those of us with progressive MS. I've attended some of those "webcasts" that claim to be for progressive MS, and then it turns out they are geared toward one of the interferons or chemos. When I question why there is so little research for the progressive types they either skirt the issue or say that our progression is so slow that they can't gauge their research. I think the reason is they can't make enough money off us!

Visitor,
good discussion---

airice,
Sad to say with Bush in office there won't be much with stem cell research. I think also that most if not all research that is done with MS is geared toward relapsing remitting. There needs to be more done in the area of progressive MS. There are interferons and chemos that help RRMS, but nothing at all for those with progressive forms which is total crap. Hopefully some day scientists will wake up and research all types.

cbrodie13,
The bee thingie, I"m not going to fall for that one. But I'd like to see some real progress. I bet if the perscripts were free, there'd be a cure quick. The pharmacutical industry is making bank at our expense and all I want is to be free of this disease. What's next with stem cell research now that Bush is in control?

Jermane S,
One of my first neuro's did a lot of research on bee stings. He said not only did they do nothing, they could be dangerous because you can become allergic to bees at any time with no rhyme or reason. I definitely don't want to try it...I don't even want to do the****shots that I take-LOL!